Chapter 7 - Parent to Parent: Advice from the "Experts"
"We began the research for this book with the assumption that parents of children with disabilities possessed a significant amount of knowledge that would be helpful to families confronting similar situations. Our interviews with the 65 parents and 12 children in the study confirmed this assumption. Many families possessed critical insight and hindsight that allowed them to evaluate their experiences, successes, and mistakes in a way that can be very beneficial to other families.
tapped into our families' hindsight in two ways. First, we asked parents
to review their experiences and tell us if there was anything that they
would do differently if they had to do it over again. Second, we asked
them if they had any advice to give to other parents facing a similar
situation. Since we wanted to see how needs and situations changed over
time, we asked parents to do this for each of their children's four primary
developmental stages. The following excerpt lists the major areas of advice
and offers two helpful quotes from parents."
Parents' recommendations and advice covered several major topic areas. These included:
"I would have made changes earlier to the house to enhance independencelike getting in and out."
" Physical therapy helped a lot. It increased my child's strength and enabled him to be independent in wheelchair transfers and other things."
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