A House for All Children

Chapter 8 - The Children's Story

"The major thrust of this book has been on parents' experiences with raising a child with a physical disability. However, we realize that the parents' story is by no means the only one. Their children's insights and recommendations are just as important. To give us the complete picture of living with a disability, we also explored the children's experiences. We were curious to know how they felt about many of the same issues that we discussed with their parents: Did things get easier or harder for them as they matured? What aspects of their homes helped or hindered them? How did they feel about their social lives? What would an ideal home and neighborhood be like, and were their ideas and recommendations different from those of their parents? What advice would they give to other children with disabilities and to parents raising a child with a disability?

Finally, while we deliberately did not investigate parents' experiences with school systems, we did ask the children about the situations in their schools. This chapter excerpt summarizes the children's complex views of their school-age and adolescent years."
- Authors

School-Age Years and Adolescence

Again like their parents, the children reported greater difficulties as they grew and started school. More children described their school-age years negatively than positively. These were the years when it became obvious that their homes, without modifications, were inaccessible and unacceptable. Problems with stairs and second-floor bathrooms were mentioned. Most of the children who did not already have wheelchairs started using them during this period. Half of the children moved from apartments or two-story or split-level houses to one-level homes during this stage. The houses of the other half underwent major modifications. Parents built accessible bathrooms and/or installed such features as hydraulic bath lifts and other lifts throughout the house, a spa bathtub, stair glides, or an elevator.

One 11-year-old reported: "[Because of inaccessibility] I was never able to go over to other kids' houses to play--they always had to come to my house."

When asked about anything that increased their independence during this stage, children mentioned the same equipment and modifications that have already been discussed--mobility devices such as electric wheelchairs and three-wheeled vehicles; bigger rooms and accessible bathrooms; ramps and grab rails; accessible outdoor walkways; wide halls and doors; lowered light switches and lever door handles. Some children noted that getting a computer helped them significantly for both educational and recreational purposes.


Home - Book Highlights - Video Highlights - Order Form - Contact Info

This website is optimized for use with a screen resolution of 800x600 and Version 5.0 or higher web browsers.

All Rights Reserved - No part of this website may be reprinted without permission from
CENTER FOR ARCHITECTURE AND BUILDING SCIENCE RESEARCH
NEW JERSEY INSTITUTE OF TECHNOLOGY
CAMPBELL HALL ROOM 335
UNIVERSITY HEIGHTS
NEWARK, NEW JERSEY 07102-1982

Web Design by:

Visit Our Website-Let Us Come Up With A Creative Solution For You!